in an absence of available pictures of me from 1987, please accept this substitute courtesy of Amblin Entertainment - disclaimer: I was never that cool
These days I can tap thumb to subsequent fingers back and forth at a rapid pace nearly instinctually. It’s a nervous habit for me, a tick I do whenever I’m anxious. If the same shrink who evaluated me over 30 years ago saw me again today, I’m not sure if he’d reaffirm my ADHD diagnosis because I would ace the finger tapping test with unquestionable perfection.
Neurotypical people would describe my compulsive finger taps as fidgeting. For those of us on the autism spectrum, it’s called stimming - or self stimulating. And yes, I said “us” because I have autism too. If my parents wanted to know why I was so quirky, this is why. Perhaps if Reagan era psychology had a better understanding of autism, I would have been given a proper diagnosis. (That’s not to say I don’t have ADHD. ADHD and ASD are frequent co-occurring disorders.)
Stimming helps people with autism regulate themselves. It is great for me in the moment; unfortunately, it is only beneficial while I’m doing it. If I’m unable to reel in my nerves while repetitively thumb tapping my fingers, my nervousness returns as soon as I cease my anxious habit.
I often wonder how different my life would be if the doctors of yesteryear had correctly identified they way my brain worked when my parents took me in to be evaluated. Would I have found adequate support at Pinewood? Would middle school have been more bearable? Would I have been bullied less? Would I have found helpful coping mechanisms in junior high? Would I have fit in with my peers? Would I have been a better student at MPHS? Would I have completed college and garnered a higher paying job? Would I still be who I am now?
My life followed the rough path to here – now grown with the pressures of adult responsibility causing havoc inside my autistic brain. Between parenting three teenagers, a daughter biologically born from a worthless man, and a baby quickly becoming a toddler, my time is often consumed with kids. Then I have a full time dead end job, weekend DJ gigs, a farm requiring daily work, all while trying to maintain this blog and write my first novel. House chores, errands, bills, car repairs, date nights with my wife, maintaining friendships, support groups, doctor appointments, attempting to eat a healthy diet, and manage some semblance of exercise. It frequently feels like it’s all overwhelming.
image courtesy of International City/County Management Association
Much like Elton John, I’m still standing better than I ever did. Fueled by coffee or anxiety, I keep going, looking like a true survivor and feeling like a quirky little hyperactive kid.
Yes, I know I’m weird. It’s not easy being an adult – a thing even more complicated when you’re on the spectrum. I won’t complain though. Autism makes me a better DJ and provides me a unique perspective as a neurodivergent writer. I’m not Ok but it’s OK. There might be something wrong with me but I’m doing fine.
Still, if you see me tapping my fingers, I wouldn’t object to hearing an encouraging remark.
Great post. Access to a diagnosis is still an uphill struggle in the UK and the country is still not set up for non-neurotypical folks. I did hear on the news today the National Theatre have a new tour of 'The Curious Incident of the Dog in the Nighttime' and they've deliberately cast a guy with Autism and ADHD in the role. So maybe tiny changes? Fingers crossed.
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